Wednesday, December 23, 2009
Thursday, December 17, 2009
Last Treatment Scheduled - Yeah!!
Kyle and I received a wonderful Christmas present today with this news. The power of prayer is an extraordinary thing.
Thank you all for your thoughts and prayers ... you have helped us more than you know.
God Bless and Merry Christmas.
Cindy
Monday, December 7, 2009
#7 - DONE
Wishing everyone a happy and safe Christamas.
"And this too shall pass....."
Cindy
Monday, November 30, 2009
Only on a Monday
The best laid plans always go awry!
"And this too shall pass......"
Cindy
Sunday, November 29, 2009
Holidays are over and back to reality
Now we are back in Memphis and have to return to our "normal" life. My 7th treatment is scheduled for just after 8 AM tomorrow and I'm not really looking forward to this week as I will feel under the weather until around Friday or Saturday.
Have a wonderful and safe week.
Cindy
Thursday, November 12, 2009
Another one bites the dust
My 6th treatment was yesterday (Wed. Nov. 11th) and I only have 2 more to go.
I was able to have my port-a-cath (2nd one - other one had to be removed because it never healed correctly) put in yesterday as well and have the Hickman line removed - Yeah!!
I have also qualified for a drup called Aranesp which helps with the production of red blood cells - this will help eliminate some of the fatigue and light-headedness as well as help me become more ready for my next treatment. My next treatments are scheduled for Monday, November 30th and Thursday December 17th. I moved them so I wouldn't feel quite so bad for Christmas and New Year's.
We are having beautiful, sunny and warm days here in Memphis which lets me get out and move around with Abby as well as run errands without having to wear duck shoes. No rain for at least the last week - yeah our yard has finally dried out and Abby isn't constantly covering my kitchen floor with mud.
Wishing everyone a very Happy Thanksgiving and safe to all those that are traveling.
"And this too shall pass......"
Cindy
Friday, November 6, 2009
Week 17 & Alls Well
little tired. My hematocrit is a little low but not low enough for a
transfusion.
We heard back from the geneticist this week. The good news is that I
do not have the BRCA 1 or BRCA 2 mutation (breast cancer genes). We
are now waiting to hear from the insurance to see if they will cover
one other test - looking for Lynch Syndrome. I should hear more in
another week or so.
My 6th chemo treatment is next Wednesday.
"And this too shall pass......"
Cindy
Tuesday, October 27, 2009
Rain, Rain Go Away!!
I'm ready to start exercising again and get my energy level back up so I can do things around the house. My hemoglobin levels were a little lower again just before the last treatment, so they are talking about me having to have another transfusion. With any luck we will be able to talk the insurance company into paying for a drug to help with the stimulation of red blood cells instead of the transfusion. Should know more about this sometime this week. My catheter that they put in last week instead of another port-a-cath is healing slowly. The incision from my initial port-a-cath still has not healed completely, so they will leave the catheter in until then. At least they can use that instead of having to stick me everytime they need blood or I get chemo.
On the genetics front, we have yet to hear from the genetics lab with the results of my blood work. We hope to know something by the end of the week.
Happy Halloween Everyone!!
"And this too shall pass....."
Monday, October 19, 2009
Treatment 5
Mom comes in town this week to keep me company and play with Abby while Kyle is in and out of town. Supposed to be beautiful weather so I'm sure Abby will have Mom playing with the soccer ball alot in the backyard.
Thanks to everyone for their thoughts and prayers.
"And this too shall pass......"
Friday, October 9, 2009
Oh No - I'll be 42
My nausea and pain showed up a little early after treatment 4, but it also went away about a day earlier than it has. I've been able to enjoy most of this week - minus the rain of course - and I have big plans for next week ...... cleaning a room upstairs and some flower beds out front before it gets cold.
Remember, October is Breast Cancer Awareness Month and even though you may not think that you know someone who is affected you would be surprised at how many truly are. So remind everyone to be more diligent in screening not only for female breast cancer but for male breast cancer, ovarian cancer, colon cancer and prostate cancer. These can all related genetically and can be traced to some of the same gene mutations. Doesn't hurt to be proactive in ones own health.
"And this too shall pass......"
Thursday, October 1, 2009
4th Treatment Down - 4 to Go
I did get a chance to speak to a genetic counselor yesterday. My doctor has suggested genetic testing due to my age and the type of cancer that I have (unusual to have ovarian cancer in your early 40s). They suspect a family history and want to delve further into my family tree. This should be interesting. If something is found, at least my siblings and their kids will be better informed and be a little more closely watched in the future.
Its another beautiful fall day. I'm going to be a couch potato for the next several days as I am anticipating not feeling all that great. I should be back up and feeling much better by mid next week.
"And this too shall pass......"
Monday, September 28, 2009
What a Beautiful Fall Day
Another couple of days and another treatment....just another bump in the road to a full recovery.
"And this too shall pass......"
Tuesday, September 22, 2009
It's Now Week 11 since my surgery
My 4th chemo treatment is scheduled for next week and I will be half way thru the treatments. The past week or so has not been quite as expected.....a lot more fatigued than I was expecting. Before I've been able to feel almost normal after about day 8 following a treatment but this past week has been a little different. I'm bored and restless but when I try to get up to do things I'm out of breath and easily tired. I've been told that this is just part of the process and it will continue to slowly get worse until its all over and I'm thru with all my treatments. I'm just not used to sitting around watching TV and reading ALL the time. I've never been one to sit around and just "surf then net" either.
Kyle and I are going to get out of town again this weekend and go see the VOLS play in Knoxville. It will be a tiring trip but well worth it for a change in scenery.
Abby is doing great and still growing .... she's up to 70 lbs. now and still only 9 months.....she's going to be a big girl.
All your thoughts and prayers are greatly appreciated. "And this too shall pass......."
Wednesday, September 16, 2009
Third Treatment Down - 5 to go
Been rainy here in Memphis, so sleeping while not feeling well worked out well....just look outside, all cloudy and misty and all anyone would want to do is curl up and snooze.
Missing Kyle yesterday and today as he is out of town for work. Abby really misses him when he's not here (so do I).
Hopefully the next two weeks will be uneventful....trying to go to Knoxville again for the UT v Ohio game....have to wait and see how I feel a couple of days before we go. Should be a great time to be in East Tennessee as the leaves will be beginning to turn which always makes the trip more relaxing and enjoyable (I feel like I'm going home......).
My next treatment is scheduled for September 30th so you may not hear much between now and then. I usually just try to exercise per docs instructions and take it easy with house work and laundry....wouldn't figure anyone would want to hear how much laundry I've done today.
"And this too shall pass......"
Tuesday, September 8, 2009
Well, I made it thru
My friends and family have been continued support throughout my illness and I want to again let them know how much there help and prayers have meant to me. Without your continued presence in my life, whether thru email, comments or personal contact you are there for me no matter what has come up, Thank you.
"And this too shall pass....."
Friday, September 4, 2009
Happy Labor Day Weekend Everyone
Wishing everyone a happy and safe Labor Day weekend.
"And this too shall pass......"
Saturday, August 29, 2009
Ankle Update - Good News
As for my chemo and how I feel.....I have recovered much more quickly this time that after the first chemo treatment. I am now able to go for walks and build up my strength and endurance a little more, which should help me in the long run. I even feel well enough and have enough energy (won't know until I try) to go to the opening UT football game on Labor Day weekend in Knoxville. Go Vols!!
My next chemo treatment is scheduled on September 9th and I'm hoping it will proceed much as the second one has....with a little less bone pain if possible.
Monday, August 24, 2009
Only 6 more to go
Again, thank you to all our friends and family for your thoughts and prayers. Your continued support and thoughtfulness has helped both Kyle and I more than you will ever know.
Wednesday, August 19, 2009
It's that time again...
"And this too shall pass....."
Tuesday, August 4, 2009
On the mend from Chemo
"And this too shall pass....."
Wednesday, July 29, 2009
One Down - Seven to Go
Abby is still being wonderful and careful around me, she is so sweet (she can be a little devil at times though and drive Kyle crazy!!)
All in all, not a bad day.
"And This Too Shall Pass......"
Tuesday, July 28, 2009
Its about to Start
"And This Too Shall Pass......."
Thursday, July 23, 2009
Wednesday, July 22, 2009
Chemo is now scheduled
Its wonderful to be home! I've been home now for a week and feeling much better. Abby has behaved wonderfully and not jumped on me to irritate my incision at all. Abby is really glad to have all of us home and her regular routine in place again. She did enjoy her week long visit with "Grandma" (my mother came to stay for a week) as she was spoiled more than normal.
We had our first post-op visit with the oncologist this morning. Things are progressing nicely and looking good. I am scheduled to begin my chemo treatment next Wednesday, July 29th @ 8:30 AM. Each treatment after that will follow every 21 days.
As far as my ankle injury, I hope to begin rehab on it in the next couple of weeks. Things are finally moving forward on all fronts.
Thank you all for your thoughts and prayers over the last several weeks. Knowing that there are so many people that care has really been a Godsend.
God Bless.
Cindy
Tuesday, July 14, 2009
First day home
This afternoon she got a port-a-cath inserted that will be used to give the chemotherapy. Her first follow up appoinment with the Gyn-oncologist is next Wednesday. That's when we'll discuss the chemo regimen and get her stomach staples out.
Monday, July 13, 2009
Sunday, July 12, 2009
One more day down . . .
Her renal function has continued to improve and her other labs look good too. Barring any unforseen difficulties, the medical team is planning on sending her home on Monday.
Saturday, July 11, 2009
Fingers crossed . . .
She should get to go home in the next couple of days. She already has an appointment for Tuesday afternoon to get a port-a-cath inserted at the clinic office. She will probably be treated with cispatin or carboplatin and taxol every three weeks for 6 cycles.
A little more about what we found out from the pathology report: the tumor was confined to the right ovary and the fallopian tube on that side. All visible tumor was removed and none of the abdominal washings or samples that were sent (lymph nodes, omentum, etc) showed signs of cancer. That means her cancer is stage IIa. The majority of ovarian cancers are diagnosed at a later stage, so Cindy was very lucky that this was caught early. It makes the likelihood of successful treatment much higher.
Friday, July 10, 2009
Lymph nodes are NEGATIVE!!!!!
Other signs are looking good, too: her creatinine is down some, meaning her renal function is improving and her white count is back to normal. We're crossing our fingers that we'll get to move out of the ICU room today.
Thank you all so much for your prayers. Other than having the surgeon say "Oops, we were wrong and there wasn't any cancer in your ovary", this is about the best possible news we could have gotten.
Thursday, July 9, 2009
After further review . . .
Well, I spoke too soon earlier. After I left for lunch, the intensivist came back and decided that he'd prefer to keep her in the ICU room to more closely monitor her renal function. Her white count is also up again, but the ID specialist thinks its just a post op reaction. Either way, she's still hooked up to the monitors and we're hanging out in ICU. No results from the renal ultrasound yet.
Lots going on today . . .
Today she's going to be transferred out of the ICU area of the oncology floor to the regular surgical oncology unit. The tube that was draining her stomach has been removed, and so have most of the monitoring devices, so she'll feel a lot less tethered to the bed. She was able to start a clear liquid diet today. Her stomach incision looks good and her temp is normal. She was getting a little loopy from the pain meds, so the dose has been decreased so she can feel a little more with it and hopefully continue to keep moving around. I've heard that the nurses on the unit she's moving to can be like drill sergeants, but the sooner she gets up and walks around the better.
Really the only thing that's not going great right now is her kidney function. After getting a little better the last couple of days its gotten a little worse again. She's still peeing - which is good - but some of the lab tests are still abnormal. She's going to have a renal ultrasound this afternoon to see if that can give us any answers.
Overall, though, things are going really well. We're still waiting for the pathology reports from the samples taken during surgery. Those will be used to more accurately stage her cancer and guide the chemo treatments that will start in the next couple of weeks.
Wednesday, July 8, 2009
Tuesday, July 7, 2009
After recovery, she'll be going to the ICU part of the oncology floor. Because it'll be relatively late by the time she gets settled, they're going to leave the ventilator in place until at least tomorrow. With the large incision, the pre-existing PE, etc she may be on it for another full day.
We've crossed one hurdle but there are more to come. Cindy will be in the hospital for 5-7 more days. Chemotherapy will begin in about 10 days, but we obviously haven't discussed how often or for how long.
Monday, July 6, 2009
Nothing new today . . .
Sunday, July 5, 2009
Saturday, July 4, 2009
They decided to move her surgery up a day, so it'll be on Tuesday afternoon. We're still very nervous about what they'll find, but hopefully that will finally answer our questions. So far none of the tests - blood cultures, sinus CT, chest x-ray, etc - have identified the source of her fever, but at least we're crossing things off the list. Right now the two best possibilities seem to be an intra-abdominal infection or an inflammatory reaction as I mentioned yesterday. Unfortunately, that also means that Cindy will be in the hospital until after surgery, but that's probably the best place right now.
Cindy's hematocrit was a little low this morning, so she's getting a couple of units of blood in preparation for surgery. Lab tests also show some reduction in her renal function, which is a bit concerning. Physically it still seems normal, so hopefully its a transient reaction to the dye used in some of her scans.
On another note, many of you have asked if we need help with Abby, our lab puppy. We had already planned to board her when we thought the filter placement was going to be done as an outpatient and we just extended her stay. She loves the group playtimes and is worn out at night . . . a tired puppy is a happy puppy! I picked her up today and she'll stay at home until Tuesday when she'll go back again for another couple of days.
Friday, July 3, 2009
A long day and night . . .
On Thursday afternoon, the umbrella filter was placed with no complications, and Cindy was finally able to eat after being NPO all day. Because of the fluid in her abdomen though, she gets full with only a small quanity and then feels miserable. That was the main cause of our long night. A baruim enema is scheduled today to evaluate her large intestine and colon, so she had to drink a prep solution every hour for eight hours overnight. We tried to do it in as little fluid as possible, but the bloating and abdominal pressure made it very uncomfortable. Hopefully she'll be able to get some sleep today and have a more restful night tonight.
Wednesday, July 1, 2009
Quite a full day today . . .
The low grade fever hit early today, and when we saw Dr Smiley, she wasn't happy with Cindy's continued fever, chills , and increased white count despite her being on oral antibiotics since Friday. She decided to admit her to the hospital, check some blood cultures, and get her started on some IV antibiotics. The good news from her was that Cindy's surgery was able to be scheduled next week - Wednesday, July 8. we're both really glad she won't have to wait until the week of the 13th.
She did allow us to make a detour to the Ortho appointment, though. There we got some more good news - Cindy's ankle probably won't need surgery! Dr Murphy put her in a walking boot and hopefully the ankle will heal with some time and PT.
The IVC filter is still being placed tomorrow, but unfortunately it'll be an inpatient procedure rather than an outpatient one. Hopefully, though, she's on the road to getting rid of the persistent fevers which were really wearing her out.
How we got here . . .
On Mother's Day, Cindy tripped over the baby gate we use to keep Abby (our 6 mo old lab puppy) in the kitchen. She landed on her left knee, and other than being a little sore there seemed to be no problems. Two days later, she began having pain in her right ankle and calf. The next day, the pain had gotten considerably worse, so she went to a minor med office and was diagnosed with a deep bruise in her calf and possibly a sprained ankle. X-rays of the ankle were negative. Ice and elevation didn't really help, and by Sunday, May 17 the pain was worse than ever and we went to the ER. An ultrasound of her calf revealed a DVT (deep vein thrombosis) in the peroneal & popliteal veins of her calf & knee. Treatment was started with Lovenox and coumadin.
Over the next couple of weeks, she improved and was able to walk off of her crutches and go back to work. By the weekend of June 6, though, the ankle and calf were swollen again. On June 11, Cindy had an MRI of her ankle which showed disrupted (i.e. detached) ligaments in her ankle. She was back on the crutches and scheduled to see an orthopedic surgeon on July 1.
In the meantime, we continued regular visits to our internist to monitor her coumadin. At one of these visits, Cindy asked about a persistent dry cough she'd had for a while. A chest x-ray in the office was negative. The doctor was concerned that there might be a blood clot in her lung (a pulmonary embolism) and scheduled a CT angiogram of her chest on June 22. We went in for the angiogram at 7 am. The radiologist noticed something irregular and wanted to do an abdominal and pelvic CT as well. We went up to the internists office, and he told us that the scan showed that there was a clot in her lungs, but that wasn't all. They had also discovered a 10cm mass on one of her ovaries. While the meaning of this news sunk in, we set up an appointment with a Gyn-Oncologist.
Our first visit with the Gyn-Oncologist - Dr Linda Smiley from the West Clinic -was on Friday, June 26. She reviewed the CT scan with us and confirmed our suspicion that Cindy would need surgery to remove the mass and would also likely undergo a total hysterectomy. Because of the existing blood clot in her leg, an "umbrella filter" needs to be placed in her inferior vena cava before surgery. The purpose of this device is to catch any part of a clot that broke off from her leg before it could reach her lungs. Luckily, this can be done as an outpatient and we'll be at Baptist Hospital tomorrow morning (July 2) for the procedure.
Right now, Cindy feels OK most of the time. She does have a low-grade fever that comes and goes, and when it hits she feels pretty lousy. She's also still hobbling around because we haven't been able to do anything about her ankle yet. Because of all the upcoming procedures, she's been switched from coumadin to Lovenox to treat the blood clot. Lovenox is an anticoagulant that's injected subcutaneously (like insulin) in the abdomen twice a day. It also happens to be the drug that I've been educating health care practitioners about for the last 9 years.
That's where we stand right now. Today, we have a follow up appiontment with Dr Smiley to review some more test results and schedule the surgery. We also get to meet with the orthopedic surgeon. Originally, we assumed that he would do surgery to reattach the ligaments in her ankle, but that seems unlikely now, at least for a while.
